Augusto OdoneMichaela! They are the same enzyme! There is one enzyme for both chains. It's the same bloody enzyme!
🧡
👏
🥺
🤔
🥱
Professor NikoliasDo you know how many children die every year from choking on french fries? Many more than from Adrenoleukodistrophy. You see, ours is what is known as an orphan disease, too small to be noticed, too small to be funded, especially with the iron hand of "Reaganomics".
🧡
👏
🥺
🤔
🥱
Augusto OdoneDr. Nikolias, what about the other boys, what results are you seeing in them?
Professor NikoliasAs with Lorenzo it's too early to tell. We need this study to run for the full six months.
Augusto OdoneAnd that would tell you what is obvious right now? That avoiding apple skins and pizza has no effect on this brutal disease?
🧡
👏
🥺
🤔
🥱
Augusto OdoneWhen we first went to the Comoros, what did we do? We got to know the country, right?
Augusto OdoneSo, in order to understand it, we need to command genetics, biochemistry, microbiology, neurology, ology-ology.
Michaela OdoneAugusto, we don't have time to go to medical school.
Augusto OdoneMichaela, the doctors are in the dark. They're groping in the dark. The've got Lorenzo on a turvy-topsy diet. And that bloody immunosuppression is brutal and useless. Michaela, we should not have consigned him blindly into their hands. He should not suffer by our ignorance. We take responsibility. So... we read a little. And we go out and inform ourselves.
Michaela OdoneBut... to miss time with him while he can still speak to us...
Augusto OdoneYes, I know, I know. But he expects it of us.
🧡
👏
🥺
🤔
🥱
Augusto OdoneYou see, Michaela, it's as though he is trapped down in some dark cave. Because he's lost so much myelin, he can't find his way out. Now, we know his simple functions are intact. He breathes, he swallows, his heart beats. And from the outside world, he receives sensation. A touch, pain, cold. And here are the primal feelings. Fear, hunger, desire. While up here in the neocortex, the higher brain, locked here, are his reasoning, imagination, memory. The things that make us each ourselves. So how does he reach us? When a simple swallow is such a huge task? To find... To find the way, the path from his mind to the outside world is like willing himself through a brick wall. Michaela... Do you ever think that - maybe all this struggle, -it may have been for somebody else's kid?
Michaela OdoneYes. But I promised... I promised him - his world would never be silent. - He would never be alone.
🧡
👏
🥺
🤔
🥱
Michaela OdoneThe life of one boy is not enough reward for you to risk the reputation of the institution and the esteem of your peers.
Professor NikoliasThat was uncalled for. Your responsibility is merely towards your own child. My responsibility is towards all the boys that suffer from this disease, now and in the future. Of course I anguish for the suffering of your boy. And of course I applaud you for the efforts you make on his behalf. But I will have nothing to do with this oil.
Michaela OdoneWe are not asking, Doctor, for your anguish or your applause. We are asking merely for a little courage.
🧡
👏
🥺
🤔
🥱
Ellard MuscatineWhen Michael, our first boy, got sick, we searched around looking for anything that might help him. You know what was the best thing that happened? He was taken quickly. Now Tommy... he has lasted three years, for two of them, he's been without his sight, his mind, everything that makes him a human being, he's a vegetable. Y'know if you would just stop all this denial, you wouldn't do a thing to prolong your boy's suffering and indignity one minute longer.
Loretta MuscatineHas it occurred to you that maybe he doesn't want to be around anymore?